Archive for June 2010
Trying not to have a virtual life.
When Freddie died, he was in my arms, the only time I got to hold him like that with no wires attached. We were tucked up in a bed, with the sun pouring in through the window, peacefully on our own, just the three of us. We didn’t have long, he lasted very little time once his oxygen was removed, and it was a gentle end. I had time to look at him, looking like an ordinary baby, sleeping (it seemed) in my arms. It was easy to forget that actually he was giving up, easy enough just to look and drink him in, suddenly so very ordinary and right. There is a picture of me holding him, sadly after he’d died (I wish I had thought to take one before but I just wanted everyone away quickly) and we look so right together. My face isn’t the ravaged-tear-stained-stressed one from the night before. I look very close to happy, very close to someone admiring their newborn son.
We left quite soon after; once he’d gone he stopped feeling like a baby quite quickly and I didn’t feel the need to look at him for hours. In fact, to do so felt ‘wrong’ and strangely voyeuristic. I might have, had we not had the girls, but we knew they were expecting the news and felt we needed to be with them. I forgot, for a while, that he felt like he let us go and I forgot I hadn’t needed to carry on being there. I couldn’t tell you how long it was now that we were in that room. It felt like minutes but I think probably it was a good while. He died at 9.15; I think perhaps we were home by 11. I don’t know how long it took for him to die. I forgot afterwards that he has seemed so ‘gone’ so quickly and regretted it. I tore myself in shreds to think of him cold and alone but I never went back to see him again.
In the last little while before he died, I promised him we would do better, that we would live life for him. It was hard to remember that too, just to start with. But I think we’re doing better now. The girls are busy, we’re spending time with friends, we’re working on the business, we’re getting out. This weekend I gardened and ignored my computer as much as I could. We’ve drawn together and played together and written together and read together and watched things. Doctor Who ended and that was a shock because we watched the first of those when we popped home from hospital for a while. A whole series has come and gone with a desperately alive Freddie at the beginning and absolutely no Freddie at the end.
I’ve biked. I’ve been counting up miles with an oddly euphemistic “I’ve biked X miles since we came home from hospital” like I can say that and not notice I came home from hospital without Freddie, like it is somehow better that “since Freddie died”. Today i got to 145 miles. Some achievement I think. I’m a bit fitter, a little browner, absolutely no lighter. My body is in rebellion and I don’t really know why.
But the biking feels good. And the living feels okay. Sometimes I think “how can I be laughing when my son is dead?” but then, even in the moments when the black humour spikes out, or the rage spikes out, I know that I don’t want to be depressed or sad or angry or cruel in his name. It would seem terribly disrespectful to him. I want to be better for him, not worse. Thinner too would be nice.
Tomorrow it will be 11 weeks since he died. I’m trying to look forward. I’m trying to not wallow. I’m trying not to beat myself with sticks. I’m trying, extremely, extremely hard, to live.
It’s astonishing how much energy it requires.
A Quick Facebook Business Plug (win £20 voucher!)
We’d like 200 fans for each of our websites. So,we’re going to try a give away. I’ll offer a £20 voucher when each page reaches 200 fans. You get one ticket in the draw for being a fan(present fans will be included), an extra ticket for posting this draw on Facebook and or twitter and an extra ticket for each person who lets me know they joined because of you.
You need to tell me what you’ve done in the comments, so i can keep track! If we get more than 400 tickets on a draw (per site) we’ll add a second prize.
Reclaiming the Rainbow
It’s time to replace the egg in the basket. I don’t know whether I’ll need it again. Perhaps not. Perhaps. Maybe. If nature thinks so. If I can make myself think so. Possibly if I can work out how to outwit what appears to be a slightly temperamental thyroid. Lots of things. Never thought I would find myself on the wrong side of fertility worries and baby loss, that’s for sure. Not sure it counts anyway, if you’ve given birth 5 times.

My lovely brother-in-law made me a Freddie chick under a rainbow and I’ve added him to the header. I think he looks beautiful – but then, I would. I’m his mummy.

I never thought much about Freddie’s ‘Maybe Twin’. I do now sometimes, when I see rainbows like this; one easy to see, one hidden in the background. When I was little I had a very strong conviction that I was missing a twin, that I should have had a brother to look after me. Maybe it’s better, if Freddie was a twin, that they didn’t have to be apart. Bit hard on all of us though.
JustGiving – in memory of Freddie.
The tiring and the downright bad.
The worst thing about this is how it turns you into a downright bitch. Oh, i know it. I don’t know if there is any way round the raging bitterness that leaks out into the most ordinary of moments. The happy moments.
Unexpected announcements. Hate them. Photo contests. Hate them. Talking about how long it is until all the children in the house leave home. Hate it. Knowing Freddie will never be the 7th grandchild, not properly, not really. That maybe we’ll never say “that’s my son over there.” Even if we do, it will never be for him. I’ll never know, not ever, if he was from the winter or the summer side of our family. His due date fell just on the cusp of birth dates and personality splits in the house. How ironic.
Raging at everything, even the people i love, because even though i am one of the luckiest women on the planet, everyone is going to say something that hurts. And they can only avoid that by ignoring me, which would be awful and unbearable and how can i possibly avoid driving people to exhausted insanity with the impossibility of that?
“I’m a bitch, I’m a lover
I’m a child, I’m a mother
I’m a sinner, I’m a saint.”
The aptly (for me) Meredith Brookes.
Keeping the lid on my temper. Coping with the flicked glances from my children when anything happens they think might upset me. Upset me. When they’ve lost their brother and are doing so very much better than i am.
Being patient. Being brave. Being strong. Being plain fucking angry all the time with no-one to lash it out at.
Going to baby loss services and someone taking their beautiful, gorgeous 2 1/2 month old boy to it.
Service being lovely and thoughtful and just right if you are anyone but me. The forgotten remembered, the obvious forgotten. My own unmentioned ignored even by me because i was too slow to alter my mind set and make it something bearable.
The unnecessary tyranny of circumstance meaning the neonatal transfer team turned up at the door of the hospital just as i was walking in and wheeled a baby in a travel incubator (just as Freddie did) past the chapel while i was stood outside sobbing at the baby boy inside.
Candles and Flowers and the space that got left next to Freddie’s, the only space on the display, that i could have lit another candle in and didn’t because i’m ashamed. Of myself. Of having to scratch off the scab from all that again and try to seal it back down over another baby.
This is just the most enormous mountain to climb. And still, STILL, i keep stopping in mid thought, mid-sentence and thinking. “Oh Fuck. My baby died.”
Answers that make more questions
I’m not doing so well.
I wish i was the kind of person who could switch off, accept things as they are, not question, not query, not wonder. I suppose i’ve headed on past shock and denial stages of grief (though shock seems particularly capable of re-emerging, i spent most of the last two days feeling much as i did in SCBU) and i’m on to anger and blame.
But who to blame? In the past, when births went badly and i was hurt and damaged, that was easy. The hospital and the people who cared for me got the blame. Perhaps that was a luxury of a live baby, a ‘good’ outcome. But they weren’t really good outcomes, they just had healthy babies who came home at the end of them; there is no doubt i found the aftermath of 2 of the births of the girls extremely difficult – debilitating and difficult – and i don’t look back and snort at myself because of that. And the other thing, oh anger and blame were easy in that – Max, myself, life, chance, fate, timing, myself, Max…. Mostly not fair, mostly pointless – but grief has anger and blame in it and it has to go somewhere, even if the places it goes aren’t fair.
When Max and i were in hospital, the thing that upset him most visibly, most clearly, was the thought of us going back to circles of blame and anger and distress. I promised i’d find a way not to do that and i’ve been battling against it as hard as i can. I keep telling myself i knew, KNEW that something was not right and finding this post the other day was a bit of a shock, even in the face of all the other things i listed the other day here. I even know that i spoke to both my midwife and a friend, panicking for some unearthly reason that Social Services were going to come into the ward and take the baby away before i even got out of the delivery unit. I cannot think why i would have been uttering such ridiculous fears if i hadn’t been absolutely physically sure that he was not okay.
But.
There isn’t any explanation for why he was so dreadfully unresponsive at birth; brain damage due to low oxygen, critically, terribly, heart-sinkingly low oxygen in his blood. The paediatrician came up, at best, with “there are some unanswered questions about Freddie” and really, i can’t help but feel that is just to save my feelings. He didn’t try, not AT ALL, to breathe and yet i know that he was moving downwards with contractions in a way i never felt any of my others do. I did worry the night before, i did worry the weekend before when my blood pressure went up, i did feel he wasn’t safe but i thought i was being paranoid as is my wont. I did know, in early labour, that he seemed to be still quite still, not kicking, but not having had relaxed and ordinary labours before, that didn’t seem much different. I hunted for his heartbeat while i was still at home because i was worried, just a tiny bit worried, and found it and it was exactly the same as it was throughout my pregnancy.I don’t remember any of the others kicking about while i was in labour either so i don’t know that he was so very unusual. When i was in the pool he seemed happy enough and carried on moving downwards and that was only an hour before he was born.
At an appointment yesterday, where i spectacularly didn’t think to ask some of the questions it has made we wonder about, the only things that we really could say was that the blood gas results showed it happened chronically, in the hours before, not the minutes before his birth. The cord bloods were easy to get, his circulation hadn’t collapsed, but he wasn’t dead in the womb either, so it had happened recently. But if it wasn’t cord compression, what was it? I forgot to ask if my blood pressure could have been a factor; i’m hardly a candidate for pre-eclampsia but it did take a while to come down after, enough for thme to take blood, but i assume that was the circumstances of the post birth hours. I did have terribly swollen feet after, bad water retention from early on, but i’m not a tiny woman, so it didn’t seem that odd and afterwards, stood and sat in SCBU for hours, it didn’t seem odd at all. I never got discharged or had a 6 week check, i forgot one and begged them not to do the full scale “have you thought about contraception” discharge, so i haven’t thought about it since.
I forgot to ask, if not cord compression, then what? What else would cause his oxygen not to be there? The placenta was fine, his heartbeat was absolutely fine – so… what?
One little something, something i also knew and fretted about, was that although i never had critically less fluid, not enough to trigger a worry, i had a smaller bump. He was my second biggest baby, even at only 3 days overdue, but i was tiny by comparison to the girls and my bump was rock hard, painfully hard, for weeks. I let myself think it was because he was a boy, because i ate better, because it was longer since i had been pregnant, but something was different. There was just less fluid, less room for him to move. When my waters broke, while i was asleep, there was no gush of it at all, though i assumed that was due to him being more engaged. I did wonder briefly is a smudge on a pad was greenish waters but after that what little there was seemed clear enough, just very little of it. I got to the hospital and through a few hours at home with just pads – i wore a towel, a hand towel, in my trousers with Josie. We discussed whether, if his brain and heart needed all the oxygen, he diverted his blood away from his kidneys. I certainly feel there are some questions over his kidneys and liver – he needed lights for jaundice at less than 24 hours old and i know his wet nappies were just a bit bigger than they expected, but no one else seems to find that as odd as i do. I suppose i only know about well babies.
I’ve wondered whether we pootled about at home and he was dying all that time, but when i got to the hospital i had 20 minutes of monitoring before i went in the pool and the trace was fine, just fine. So if it happened in the hours before birth – when? what? how? why?
The trouble is, i’m struggling to hear my own instincts above the reality of the know-ables. I know that my anxieties got significantly worse after i got flu-ey. I had real problems with terrible coughs and colds from the end of October onwards and after one that began on New Years Eve, i never managed to get my nose back to being non-congested. breathing became a real effort but i put it down to extra blood flow in my nose and body; it cleared once i had him. And i do have issues with breathing; one side of my nose is permanently slightly blocked with a polyp or something and it was so bad that i had to use a nose spray, one i used with Josie too so no anxieties about that, to keep my breathing clear. I meant to go to the doctor about it all, but it seemed like one of those pregnant thing – full of baby, had dreadful cough and colds, low immune system, stop making a fuss. Did that flu start a string of events of him just not getting quite enough oxygen? Did my sedentary lifestyle make that worse? Was labour the last straw? Was the last couple of weeks the last straw? Would he have survived a c-section? Would he have survived an epidural? Would it be better or worse now to have a damaged in womb baby that half made it because i didn’t labour? Better or worse to have had him born flat by c-section and me stuck in a bed away from him? better or worse to know it couldn’t possibly be my fault because i didn’t labour?
There are some things here that ring true, not least the stuff about chest infections and colds and the mention of heightened activity in the womb during periods of distress. I know he did that, i know he scrabbled about but i wondered if he was lying on his cord. If he was, he’d have died. So what was wrong? (Don’t tell me not to Google unless you have also had to come home from a Maternity Unit without a full term, apparently healthy until the birth, baby. Please, just don’t.)
And in the end, the inescapable truth. Did my decision to give birth naturally kill him? Why did i do it that way, when the ‘easier’ option was a c/s? Did i put myself first? Did i think experience was more important than baby? Have i got my just deserts for railing against the way i had to have the girls? How ironic that after all those miserable and unsupported pregnancies and births, the one time i was supported, care for, listened to, included in my care – the thing had to happen that is the big fear in all labour wards. The one time i got to experience a beautiful, easy, relaxed and natural birth, it had to be the time the baby wouldn’t cry.
I just don’t know. I don’t know anything. If i had sensible feelings about him, why did he make it to full term, a good size, looking healthy with a good heartbeat? If he was damaged through the birth, why did his heartbeat stay good? If it happened that way, how was there time – from the minute i woke up, just before 3am and knew it was starting (with waters broken, which was my big fear) to the moment i gave birth to him at 12.30pm, it doesn’t seem long enough. There wasn’t a critical moment of panic, there wasn’t more “ooh, let’s just check this” than i’ve experienced in any of my other labours. I was 2-3cm at 9.30am and he was born 3 hours later. It was easy. It should have been easy on him. His heartbeat and traces suggest it was easy on him. So why the hell wasn’t it?
The writing’s on the wall (or window)
Maddy wrote this. I’m so proud
We had a lovely day at Zoe’s today. I took a variety of gel pens, some of which can be used on windows but all of which blend together. We got the kids to experiment for a while, drawing alongside them again to help encourage them.
Then we gave them a word (tree) and another after that (butterfly) and got them to do a picture of them in 10 minutes on a clean piece of paper. It was fun. But i can’t actually be bothered to do links to them all until i’ve put them in a set and done a mini-display of them, so i’ll show you mine instead



























a>
